2015 Kentucky Revised Statutes CHAPTER 211 - STATE HEALTH PROGRAMS 211.192 Information to be provided concerning Down syndrome and spina bifida -- By whom -- When.
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211.192 Information to be provided concerning Down syndrome and spina bifida -By whom -- When.
(1)
(2)
(3)
For the purposes of this section:
(a) "Down syndrome" means a chromosomal condition caused by cell division
that results in the presence of an extra whole or partial copy of chromosome
21; and
(b) "Spina bifida" means a neural tube defect, the most common of which is the
open neural tube defect myelomeningocele.
A health facility as defined in KRS 216B.015(13), physician, health care provider,
nurse midwife, or genetic counselor who renders prenatal care, postnatal care, or
genetic counseling, upon receipt of a positive test result from a test for Down
syndrome or spina bifida, shall provide the expectant or new parent with
information provided by the Cabinet for Health and Family Services under
subsection (3) of this section.
The Cabinet for Health and Family Services shall make available to any person who
renders prenatal care, postnatal care, or genetic counseling to parents who receive a
prenatal or postnatal diagnosis of Down syndrome or spina bifida and to any person
who has received a positive test result from a test for Down syndrome or spina
bifida the following:
(a) Up-to-date, evidence-based, written information about Down syndrome or
spina bifida that has been reviewed by medical experts and Down syndrome or
spina bifida organizations and includes information on physical,
developmental, educational, and psychosocial outcomes, life expectancy,
clinical course, intellectual and functional development, and treatment
options; and
(b) Contact information regarding support programs and services for expectant
and new parents of children with Down syndrome or spina bifida, including
information hotlines specific to Down syndrome or spina bifida, resource
centers or clearinghouses, national and local Down syndrome or spina bifida
organizations such as Down Syndrome of Louisville, Down Syndrome
Association of Central Kentucky, Down Syndrome Association of South
Central Kentucky, Green River Area Down Syndrome Association, Down
Syndrome Association of Greater Cincinnati Serving Northern Kentucky,
Council on Developmental Disabilities, the Spina Bifida Association of
Kentucky, and other education and support programs.
Effective: June 24, 2015
History: Amended 2015 Ky. Acts ch. 42, sec. 1, effective June 24, 2015. -- Created
2013 Ky. Acts ch. 6, sec. 1, effective June 25, 2013.
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