2005 Minnesota Statutes - 144.1255 — Advisory Committee on Heritable and Congenital Disorders.

     144.1255 Advisory Committee on Heritable and Congenital 
  Disorders. 


    Subdivision 1.    Creation and membership.  (a) By July 
 1, 2003, the commissioner of health shall appoint an advisory 
 committee to provide advice and recommendations to the 
 commissioner concerning tests and treatments for heritable and 
 congenital disorders found in newborn children.  Membership of 
 the committee shall include, but not be limited to, at least one 
 member from each of the following representative groups:  


    (1) parents and other consumers; 


    (2) primary care providers; 


    (3) clinicians and researchers specializing in newborn 
 diseases and disorders; 


    (4) genetic counselors; 


    (5) birth hospital representatives; 


    (6) newborn screening laboratory professionals; 


    (7) nutritionists; and 


    (8) other experts as needed representing related fields 
 such as emerging technologies and health insurance. 


    (b) The terms and removal of members are governed by 
 section 15.059.  Members shall not receive per diems but shall 
 be compensated for expenses.  Notwithstanding section 15.059, 
 subdivision 5, the advisory committee does not expire. 


    Subd. 2.    Function and objectives.  The committee's 
 activities include, but are not limited to:  


    (1) collection of information on the efficacy and 
 reliability of various tests for heritable and congenital 
 disorders; 


    (2) collection of information on the availability and 
 efficacy of treatments for heritable and congenital disorders; 


    (3) collection of information on the severity of medical 
 conditions caused by heritable and congenital disorders; 


    (4) discussion and assessment of the benefits of performing 
 tests for heritable and congenital disorders as compared to the 
 costs, treatment limitations, or other potential disadvantages 
 of requiring the tests; 


    (5) discussion and assessment of ethical considerations 
 surrounding the testing, treatment, and handling of data and 
 specimens generated by the testing requirements of sections 
 144.125 to 144.128; and 


    (6) providing advice and recommendations to the 
 commissioner concerning tests and treatments for heritable and 
 congenital disorders found in newborn children. 


    HIST: 1Sp2003 c 14 art 7 s 27