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214.556 Kentucky Cancer Registry -- Cancer patient data management
system.
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There is hereby established within the Kentucky cancer program the Kentucky
Cancer Registry and the cancer patient data management system for the
purpose of providing accurate and up-to-date information about cancer in
Kentucky and facilitating the evaluation and improvement of cancer prevention,
screening, diagnosis, therapy, rehabilitation, and community care activities for
citizens of the Commonwealth. The cancer patient data management system
shall be administered by the Lucille Parker Markey Cancer Center.
Each licensed health facility which provides diagnostic services, or diagnostic
services and treatment, or treatment to cancer patients shall report to the
Kentucky Cancer Registry, through the cancer patient data management
system and in a format prescribed by the Kentucky Cancer Registry, each case
of cancer seen at that health facility. Failure to comply may be cause for
assessment of an administrative fine for the health facility, the same as for
violation of KRS 216B.250.
Each health facility shall grant to the cancer registry access to all records
which would identify cases of cancer or would establish characteristics of the
cancer, treatment of the cancer, or status of any identified cancer patient.
Hospitals actively participating and enrolled in the cancer patient data
management system of the Kentucky Cancer Program as of July 13, 1990,
shall be considered to be in compliance with this section. The Lucille Parker
Markey Cancer Center shall provide staff assistance in compiling and reporting
required information to hospitals which treat a low volume of patients.
No liability of any kind or character for damages or other relief shall arise or be
enforced against any licensed health facility by reason of having provided the
information or material to the Kentucky Cancer Registry pursuant to the
requirements of this section.
The identity of any person whose condition or treatment has been reported to
the Kentucky Cancer Registry shall be confidential, except that:
(a) The Kentucky Cancer Registry may exchange patient-specific data with
any other cancer control agency or clinical facility for the purpose of
obtaining information necessary to complete a case record, but the
agency or clinical facility shall not further disclose such personal data; and
(b) The Kentucky Cancer Registry may contact individual patients if
necessary to obtain follow-up information which is not available from the
health facility.
All information, interviews, reports, statements, memoranda, or other data
furnished by reason of this section, expressly including all portions, subsets,
extracts, or compilations of the data as well as any findings or conclusions
resulting from those studies, shall be privileged and shall not be considered
public records under KRS 61.870 to 61.884. The Kentucky Cancer Registry
may determine that certain extracts, subsets, or compilations of data do not
reveal privileged information and may be published or otherwise shared to
further the public health goals set forth herein.
The Kentucky Cancer Registry shall make periodic reports of its data and any
related findings and recommendations to the Legislative Research
Commission, the Interim Joint Committees on Appropriations and Revenue and
on Health and Welfare, the Governor, the Cabinet for Health and Family
Services, the reporting health facility, and other appropriate governmental and
nongovernmental cancer control agencies whose intent it is to reduce the
incidence, morbidity, and mortality of cancer. The Kentucky Cancer Registry
may conduct analyses and studies as are indicated to advance cancer control
in the Commonwealth, either directly or by confidentially sharing data with third
parties.
Effective:July 12, 2012
History: Amended 2012 Ky. Acts ch. 127, sec. 2, effective July 12, 2012. -Amended 2005 Ky. Acts ch. 99, sec. 463, effective June 20, 2005. -- Amended
1998 Ky. Acts ch. 426, sec. 410, effective July 15, 1998. -- Amended 1994 Ky.
Acts ch. 184, sec. 3, effective July 15, 1994. -- Created 1990 Ky. Acts ch. 318,
sec. 5, effective July 1, 1990.
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