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211.192 Information to be provided concerning Down syndrome -- By whom -When.
(1)
(2)
(3)
For the purposes of this section, "Down syndrome" means a chromosomal
condition caused by cell division that results in the presence of an extra whole
or partial copy of chromosome 21.
A health facility as defined in KRS 216B.015(13), physician, health care
provider, nurse midwife, or genetic counselor who renders prenatal care,
postnatal care, or genetic counseling, upon receipt of a positive test result from
a test for Down syndrome, shall provide the expectant or new parent with
information provided by the Cabinet for Health and Family Services under
subsection (3) of this section.
The Cabinet for Health and Family Services shall make available to any person
who renders prenatal care, postnatal care, or genetic counseling to parents
who receive a prenatal or postnatal diagnosis of Down syndrome and to any
person who has received a positive test result from a test for Down syndrome
the following:
(a) Up-to-date, evidence-based, written information about Down syndrome
that has been reviewed by medical experts and Down syndrome
organizations and includes information on physical, developmental,
educational, and psychosocial outcomes, life expectancy, clinical course,
intellectual and functional development, and treatment options; and
(b) Contact information regarding support programs and services for
expectant and new parents of children with Down syndrome, including
information hotlines specific to Down syndrome, resource centers or
clearinghouses, national and local Down syndrome organizations such as
Down Syndrome of Louisville, Down Syndrome Association of Central
Kentucky, Down Syndrome Association of South Central Kentucky, Green
River Area Down Syndrome Association, Down Syndrome Association of
Greater Cincinnati Serving Northern Kentucky, Council on Developmental
Disabilities, and other education and support programs.
Effective:June 25, 2013
History: Created 2013 Ky. Acts ch. 6, sec. 1, effective June 25, 2013.
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