2005 Illinois Code - Chapter 410 Public Health 410 ILCS 405/ Alzheimer\'s Disease Assistance Act.
(410 ILCS 405/1) (from Ch. 111 1/2, par. 6951)
Sec. 1.
Short Title.
This Act shall be known and may be cited as
the Alzheimer's Disease Assistance Act.
(Source: P.A. 84‑378; 84‑513.)
|
(410 ILCS 405/2) (from Ch. 111 1/2, par. 6952)
Sec. 2. Policy declaration. The General Assembly finds that
Alzheimer's disease and related disorders are devastating health conditions
which destroy certain vital cells of the brain and which affect an estimated
4,500,000
Americans. This means that approximately 200,000
Illinois
citizens are victims. The General Assembly also finds that 50% of all
nursing home admissions in the State may be attributable to the Alzheimer's
disease and related disorders and that these conditions are the fourth
leading cause of death among the elderly. It is the opinion of the General
Assembly that Alzheimer's disease and related disorders cause serious
financial, social and emotional hardships on the victims and their families
of such a major consequence that it is essential for the State to develop and
implement policies, plans, programs and services to alleviate such hardships.
The General Assembly recognizes that there is no known cause or cure
of Alzheimer's disease at this time, and that it can progress
over an extended period of time and to such a degree that the victim's
deteriorated condition makes him or her susceptible to other medical
disorders that generally prove fatal. It is the intent of the General
Assembly, through implementation of this Act, to establish a program for
the conduct of research regarding the cause, cure and treatment of Alzheimer's
disease and related disorders; and, through
the establishment of Regional Alzheimer's Disease Assistance Centers and
a comprehensive, Statewide system of regional and community‑based services,
to provide for the identification, evaluation, diagnosis, referral and
treatment of victims of such health problems.
(Source: P.A. 93‑929, eff. 8‑12‑04.)
(410 ILCS 405/3) (from Ch. 111 1/2, par. 6953)
Sec. 3.
Definitions.
As used in this Act:
(a) "Alzheimer's disease and related disorders" means a health condition
resulting from significant destruction of brain tissue with resultant loss
of brain function, including, but not limited to, progressive, degenerative
and dementing illnesses including presenile and senile dementias, including
Alzheimer's disease and other related disorders.
(b) "Regional Alzheimer's Disease Assistance Center" or "Regional ADA
Center" means any postsecondary higher educational institution having
a medical school in affiliation with a medical center and having a National
Institutes of Health and National Institutes on Aging sponsored Alzheimer's
Disease Core Center.
Any Regional ADA Center which was designated as having a National Alzheimer's
Disease Core Center but no longer carries such designation shall continue to
serve as a Regional ADA Center.
(c) "Primary Alzheimer's provider" means a licensed hospital, a medical
center under the supervision of a physician licensed to practice medicine
in all of its branches, or a medical center that provides medical
consultation, evaluation, referral and treatment to persons who may be or
who have been diagnosed as victims of Alzheimer's disease or related
disorders pursuant to policies, standards, criteria and procedures adopted
under an affiliation agreement with a Regional ADA Center under this Act.
(d) "Alzheimer's disease assistance network" or "ADA network" means the
various health, mental health and social services agencies that provide
referral, treatment and support services under standards and plans
adopted and implemented in conjunction with a Regional ADA Center.
(e) "ADA Advisory Committee" or "Advisory Committee" or "Committee" means
the Alzheimer's Disease Advisory Committee created under Section 6 of this Act.
(f) "Department" means the Illinois Department of Public Health.
(Source: P.A. 90‑404, eff. 8‑15‑97.)
|
(410 ILCS 405/4) (from Ch. 111 1/2, par. 6954)
Sec. 4.
Development of standards for a service network and
designation of regional centers and primary providers. By January 1, 1987, the
Department, in consultation with the Advisory Committee, shall develop
standards for the conduct of research and for the identification,
evaluation, diagnosis, referral and treatment of victims of Alzheimer's
disease and related disorders and their families through the ADA network of
designated regional centers and other providers of service
under this Act. Such standards shall include all of the following:
(a) A description of the specific populations and |
|
geographic areas to be served through ADA networks that may be established under this Act.
|
|
(b) Standards, criteria and procedures for
|
|
designation of Regional ADA Centers, which ensure the provision of quality care to a broad segment of the population through on‑site facilities and services and through a network of primary Alzheimer's providers and other providers of service that may be available within the service area defined by the Department. At least 2 Regional ADA Centers shall be conveniently located to serve the Chicago metropolitan area and at least one Regional ADA Center shall be conveniently located to serve the balance of the State. The Regional ADA Centers shall provide at least the following:
|
|
(1) comprehensive diagnosis and treatment
|
|
facilities and services which have (i) professional medical staff specially‑trained in geriatric medicine, neurology, psychiatry and pharmacology, and the detection, diagnosis and treatment of Alzheimer's disease and related disorders, (ii) sufficient support staff who are trained as caregivers to victims of Alzheimer's disease and related disorders, (iii) appropriate and adequate equipment necessary for diagnosis and treatment, (iv) transportation services necessary for outreach to the service area defined by the Department and for assuring access of patients to available services, and (v) such other support services, staff and equipment as may be required;
|
|
(2) consultation and referral services for
|
|
victims and their families to ensure informed consent to treatment and to assist them in obtaining necessary assistance and support services through primary Alzheimer's providers and various private and public agencies that may otherwise be available to provide services under this Act;
|
|
(3) research programs and facilities to assist
|
|
faculty and students in discovering the cause of and the diagnosis, cure and treatment for Alzheimer's disease and related disorders;
|
|
(4) training, consultation and continuing
|
|
education for caregivers, including families of those who are affected by Alzheimer's disease and related disorders;
|
|
(5) centralized data collection, processing and
|
|
storage that will serve as a clearinghouse of information to assist victims, families and ADA Resources, and to facilitate research; and
|
|
(6) programs of scientific and medical research
|
|
in relation to Alzheimer's disease and related disorders that are designed and conducted in a manner that may enable such center to qualify for Federal financial participation in the cost of such programs.
|
|
(c) Procedures for recording and reporting research
|
|
and treatment results by primary Alzheimer's providers and other affiliated providers of service that are within the ADA network to the Regional ADA Center and to the Department.
|
|
(d) Policies, procedures and minimum standards and
|
|
criteria to be included in affiliation agreements between primary Alzheimer's providers and the Regional ADA Center in the conduct of any research and in the diagnosis, referral and treatment of victims of Alzheimer's disease and related disorders and their families.
|
|
(e) Policies, procedures, standards and criteria,
|
|
including medical and financial eligibility factors, governing admission to and utilization of the programs, facilities and services available through the ADA network by persons who may be or who have been diagnosed as victims of Alzheimer's disease and related disorders, including forms and procedures for obtaining necessary patient consents to participation in research, and in the reporting and processing of appropriate information in a patient's medical records in relation to consultations, referrals and treatments by the various providers of service within the ADA network.
|
|
(Source: P.A. 90‑404, eff. 8‑15‑97; 91‑357, eff. 7‑29‑99.)
|
(410 ILCS 405/5) (from Ch. 111 1/2, par. 6955)
Sec. 5.
State ADA Plan.
By January 1, 1987, and every 3 years
thereafter, the Department shall prepare a State Alzheimer's Disease
Assistance Plan in consultation with the Advisory Committee to guide
research, diagnosis, referral and treatment services within each service
area described by the Department. Such plan shall indicate any research
programs being conducted and the status, results, costs and funding sources
of such programs. The plan shall also indicate the number of persons
served, the extent of services provided, and the resources required for the
delivery of services through the ADA networks established under this Act.
Such plan shall identify and describe the duties and accomplishments of
each Regional ADA Center, the primary Alzheimer's providers and other various
providers of service within the ADA network of the described service area.
The Department shall consult with and take into consideration the plans of
local and State comprehensive health planning agencies recognized under the
Comprehensive Health Planning Act.
(Source: P.A. 84‑378; 84‑513.)
|
(410 ILCS 405/6) (from Ch. 111 1/2, par. 6956)
Sec. 6. ADA Advisory Committee. There is created the Alzheimer's
Disease Advisory Committee consisting of 21 voting members appointed by the
Director of the Department, as well as 5 nonvoting members as hereinafter
provided in this Section. The Director or his designee shall serve as one
of the 21 voting members and as
the Chairman of the Committee. Those appointed as voting members shall
include persons who are experienced in
research and the delivery of services to victims and their families.
Such members shall include 4 physicians licensed to practice medicine in all of
its branches, one representative of a postsecondary educational institution
which administers or is affiliated with a medical center in the State, one
representative of a licensed hospital, one registered nurse, one
representative of a long term care facility under the Nursing Home Care
Act, one representative of an area
agency on aging as defined by Section 3.07 of the Illinois Act on the
Aging, one social worker, one representative of an organization established
under the Illinois Insurance Code for the purpose of providing health
insurance, 5 family members or representatives of victims of Alzheimer's
disease and related disorders, and 4 members of the general public. Among
the physician appointments shall be persons with specialties in the fields
of neurology, family medicine, psychiatry and pharmacology. Among the
general public members, at least 2 appointments shall include persons 65
years of age or older.
In addition to the 21 voting members, the Secretary of Human Services (or
his or her designee) and
one additional representative of the Department of Human Services designated by
the Secretary plus the Directors of the following
State agencies or their designees shall serve as nonvoting members:
Department on Aging, Department
of Public Aid, and Guardianship and Advocacy Commission.
Each voting member appointed by the
Director of Public Health shall serve for a term of 2 years, and until his
successor is appointed and qualified. Members of the Committee shall not
be compensated but shall be reimbursed for expenses actually incurred in
the performance of their duties. No more than 11 voting members may be of
the same political party. Vacancies shall be filled in the same manner as
original appointments.
The Committee shall review all State programs and services provided by State agencies that are directed toward persons with Alzheimer's disease and related dementias, and recommend changes to improve the State's response to this serious health problem.
(Source: P.A. 93‑929, eff. 8‑12‑04.)
(410 ILCS 405/7) (from Ch. 111 1/2, par. 6957)
Sec. 7. Regional ADA center funding. Pursuant to
appropriations enacted by the General Assembly, the Department shall
provide funds to hospitals affiliated with each
Regional ADA Center for
necessary research and
for the development and maintenance of services for victims of Alzheimer's
disease and related disorders and their families. For the fiscal year
beginning July 1, 2003, and each year thereafter, the Department shall effect
payments under this Section to hospitals affiliated with each Regional ADA
Center through the Illinois Department of Public Aid under the Excellence in Alzheimer's Disease Center Treatment Act. The Department of Public Aid shall annually report to the Advisory Committee established under this Act regarding the funding of centers under this Act. The Department shall
include the annual expenditures for this purpose in the plan required by
Section 5 of this Act.
(Source: P.A. 93‑20, eff. 6‑20‑03; 93‑929, eff. 8‑12‑04.)
Disclaimer: These codes may not be the most recent version. Illinois may have more current or accurate information. We make no warranties or guarantees about the accuracy, completeness, or adequacy of the information contained on this site or the information linked to on the state site. Please check official sources.
